About ENRAH

ENRAH was founded in Vienna, Austria in April 2003 (Registration: ZVR Zahl: 542743764) by the parents of a child with Alternating Hemiplegia of Childhood (AHC). ENRAH as a European Association is grouping patient representatives, AHC treating neurologists, basic science researchers, clinicians and geneticists from academia and industry to actively forward medical scientific research on AHC.

ENRAH Steering Committee:

• President: Prof. Brian Neville, UK
• Vice-President: Ms. Rosaria Vavassori, Italy
• Secretary: Prof. Georg Spiel, Austria
• Treasurer: Friedrich Ebinger, Germany
• Dominique Poncellin, France
• Sona Nevsimalova, Czech Republic
• Laura Laan, The Netherlands
• Arn van den Maagdenberg, The Netherlands
• Eleni Panagiotakaki, france
• Giuseppe Gobbi, Italy
• Secretary General: Tsveta Schyns, Austria
• Financial Officer: Andreas Moser, Austria