European Network for Research on Alternating Hemiplegia
ENRAH
- is a patient-driven non-profit organization
- founded in Vienna, Austria in April 2003
- to forward research on Alternating Hemiplegia of Childhood (AHC)
- and other related rare pediatric neurological diseases
- by bringing together patients and their families
- with competent clinicians and relevant researchers.
ENRAH
- combines relevant expertise to create the interface
- for sustainable research and
- the development of new treatments for these diseases.
News:
· ENRAH Registry containing 157 patients records from 9 European countries is now OPEN
· ENRAH Secretariat has moved to Brussels, Belgium
Events:
nEUroped Extended Network Meeting in Brussels, 21-23 November 2010
