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The Association - About
ENRAH was founded in Vienna, Austria in April 2003 by the parents of a child with Alternating Hemiplegia of Childhood (AHC). It is a European Association supported by patient representatives, AHC treating neurologists, basic science researchers, clinicians and geneticists from academia and industry to actively forward medical scientific research on AHC.
Association registered under Austrian Vereinsgesetz
Founded: April, 2003
Reg.Nr.: ZVR 542743764
Download Statutes of the Association
Statutes in German
ENRAH Steering Committee:
- President: Brian Neville, UK
- Vice-President: Rosaria Vavassori, Italy
- Secretary: Georg Spiel, Austria
- Treasurer: Friedrich Ebinger, Germany
- Dominique Poncelin, France
- Sona Nevsimalova, Czech Republic
- Laura Laan, The Netherlands
- Arn van den Maagdenberg, The Netherlands
- Eleni Panagiotakaki, France
- Giuseppe Gobbi, Italy
- Secretary General: Tsveta Schyns
- Accounting and Auditing: Mag. Irene Wiesinger
Wirtschaftstreuhänder & Steuerberater
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