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Alternating Hemiplegia of Childhood (AHC) » Living with AHC
- Wach the personal story of a father of an AHC girl in Iceland http://humantimebombs.com.
- Support organisations for people and families affected by Alternating Hemiplegia of Childhood:
Worldwide
Connect to the AHC Community through RARE CONNECT
- Orphanet Disability Project. Read the description of disabilities related to Alternating Hemiplegia of Childhood.
- Caregiver's burden and psychosocial issues in alternating hemiplegia of childhood : parental perceptions of AHC were investigated among 30 French families with an AHC affected family member The study showed that the disease has a significant impact on families and that parental concerns change over the time: whereas at time of diagnosis the concern of the parents were focused on the hemiplegic spells and abnormal eye movements, at the later stage, parents ranked the cognitive consequences of the disease and the low level of autonomy as the highest burden of AHC.
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