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ENRAH for SMEs Project
The ENRAH for SMEs project has the ambition to co-ordinate, support and promote, both educational and research activities in Europe related to Alternating Hemiplegia of Childhood. It will also link to similar efforts in other countries of the world (USA, Australia, Japan).
The main objectives of the EU Project are:
- To establish a European multidisciplinary research network AHC
- To set up a secured web-based registry of AHC cases in Europe
- To develop a mulitlingual website on AHC to provide information to different users
- To identify relevant SMEs and integrate them in the network´s activities
- To collect project ideas and research profiles of SMEs
This project is supported through Priority 1 (Life Sciences, Genomics and Biotechnology for Health) of the European Union´s 6th Framework Programme. Contract Number: LSSM-CT-2005-516513
The Consortium consists of:
- ENRAH Vienna, Austria: Co-ordinator, Ms. Tsveta Schyns, e-mail: ts@enrah.net
- RTD Services, Austria: Mr. Andreas Moser, e-mail: moser@rtd-services.com
- Landeskrankenhaus Klagenfurt, Austria: Mr. Georg Spiel, e-mail: georg.spiel@lkh-klu.at
- University Hospital Gasthuisberg,, KUL, Leuven, Belgium: Mr. Paul Casaer, e-mail: paul.casaer@uz.kuleuven.ac.be
- Charles University Prague, 1st Medical Faculty, Prague, Czech Republic: Ms. Sona Nevsimalova, e-mail: snevsi@LF1.cuni.cz
- Association Francaise de l'Hemiplegie Alternante, France: Mr. Dominique Poncelin
- University Hospital Robert Debré, APHP, Paris, France: Co-ordinator, Mr. Alexis Arzimanoglou, e-mail: alexis.arzimanoglou@rdb.ap-hop-paris.fr
- Associazione Italiana per la Sindrome di Emiplegia Alternante Onlus (AISEA),Verderio Superiore, Italy: Ms. Rosaria Vavassori, e-mail: mrvavass@tin.it
- AISEA /Unità Operativa diNeuropsichiatria Infantile Ospedale Maggiore "C.A. Pizzardi", Bologna, Italy: Ms. Melania Gianotta, e-mail: Melania.Giannotta@ausl.bologna.it
- IRCCS E.MEDEA-Associazione La Nostra Famiglia "MEDEA", Italy: Mr. Claudio Zucca, e-mail: zucca@bp.lnf.it
- Istituto Scientifico Universitario San Raffaele, Milan, Italy: Mr. Giorgio Casari, e-mail: casari.giorgio@hsr.it
- Leids Universitair Medisch Centrum, Leiden, Netherlands: Mr. Arn M.J.M. van den Maagdenberg, e-mail: maagdenberg@lumc.nl
- Department of Neurology, Leids Universitair Medisch Centrum, Leiden, Netherlands: Ms. Laura A.E.M. Laan, e-mail: L.A.E.M.Laan@lumc.nl
- Hospital Sant Joan de Deu, Barcelona, Spain: Mr. Jaume Campistol Plana, e-mail: campistol@hsjdbcn.org
- Neurosciences Unit, The Wolfson Centre, UCL, London, UK: Mr. Brian Neville, e-mail: B.Neville@ich.ucl.ac.uk
- Universitäts-Kinderklinik Heidelberg, Germany: Mr. Friedrich Ebinger, e-mail: Friedrich.Ebinger@med.uni-heidelberg.de
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